Chemotherapy Mesothelioma

Has anyone been diagnosed or have any experience with cystic mesothelioma in the peritoneal cavity?
i was diagnosed 2 years ago, i have been told it is a very rare cancer. I had peritonectomy surgery and heated intra peritoneal chemotherapy and hoped to see how many others are out there.
Cystic mesothelioma of the peritenum used to be considered benign but I think now it is classified as being a low grade tumor? There are various types . . and some are more aggressive than others.
You may be able to find more support from groups like ACOR which has an email list for Mesothelioma Patients . . this is a support group for anyone who has mesothelioma so you may find someone with your subtype . . in either case these are real patients with the disease and they may be able to point you towards other groups or share information with you:
ACOR: MESOTHELIOMA (Cancer) Support & Information
http://listserv.acor.org/archives/mesothelioma.html
Pleural Mesothelioma – Treatment with Chemotherapy
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Tags: cancer, chemotherapy, chemotherapy mesothelioma, mesothelioma, mesothelioma_chemotherapy, new_york_mesothelioma
May 9th, 2010 at 7:02 am
I do not know of any radiologist that come on here and I doubt anybody else would be qualified to read it. Try to find a qualified radiologist in your area that has some expertise in Mesothelioma. You can try a local university hospital. Also having an Oncologist that has expertise in Mesothelioma would be helpful. You have the right to get a second opinion, but this is not the place to be looking for it. Sorry, good luck.